House and Senate Language on Amyloidosis
Terry Peel, a friend of the Amyloidosis Center and member of the Boston University School of Medicine Board of Visitors, has worked to get very good language on Amyloidosis in the Senate and House Appropriations Committee reports. Terry Peel says, “This is the first time we have such strong language in both bills — and at a time when Congress is increasing overall funding for NIH”.
See the report language from the House and Senate Appropriations Committees below:
9/25/17
FISCAL YEAR 2018 AMYLOIDOSIS REPORT LANGUAGE
HOUSE AND SENATE APPROPRIATIONS COMMITTEE REPORTS
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SENATE APPROPRIATIONS COMMITTEE TITLE II—DEPARTMENT OF HEALTH AND HUMAN SERVICES AMYLOIDOSIS. —The Committee recommends that NIH continue to expand its research efforts into amyloidosis, a group of rare diseases characterized by abnormally folded protein deposits in tissues. Amyloidosis is often fatal and there is no known cure. Current methods of treatment are risky and unsuitable for many patients. The Committee directs NIH to keep the Committee informed on the steps it takes to increase the understanding of the causes of amyloidosis and measures that improve the diagnosis and treatment of this devastating group of diseases. |
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HOUSE APPROPRIATIONS COMMITTEE TITLE II—DEPARTMENT OF HEALTH AND HUMAN SERVICES MULTI-INSTITUTE RESEARCH ISSUES AMYLOIDOSIS. —The Committee recommends that NIH continue to expand its research efforts into amyloidosis, a group of rare diseases characterized by abnormally folded protein deposits in tissues. Amyloidosis is often fatal and there is no known cure. Current methods of treatment are risky and unsuitable for many patients. The Committee directs NIH to keep the Committee informed on the steps taken to increase the understanding of the causes of amyloidosis and the measures taken to improve the diagnosis and treatment of this devastating group of diseases. |