2020 Amyloidosis House LHHS Report
There was a recent large increase of funding for NIH, The House Appropriations Committee has also reported on a bill that contains very positive language on Amyloidosis.
2020 Amyloidosis House LHHS Report Language
HOUSE APPROPRIATIONS COMMITTEE
FISCAL YEAR 2020 LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION
H.R. 2740, H Report 116-62
May 15, 2019
REPORT LANGUAGE
TITLE II—DEPARTMENT OF HEALTH AND HUMAN SERVICES
NATIONAL INSTITUTES OF HEALTH
OFFICE OF THE DIRECTOR (OD)
MULTI-INSTITUTE RESEARCH ISSUES
Amyloidosis.—The Committee encourages NIH to continue its expansion of research efforts into amyloidosis, a group of rare diseases characterized by abnormally folded protein deposits in tissues. Amyloidosis is often fatal, and there is no known cure. Left untreated, there is an average survival of 15 months. Current methods of treatment are risky and unsuitable for many patients. The Committee directs NIH to inform the Committee on the steps taken to increase the understanding of the causes of amyloidosis and the measures taken to improve the diagnosis and treatment of this devastating group of diseases in the fiscal year 2021 Congressional Justification.