Amyloidosis Center News
In Memoriam: Dr. Lawreen Connors
October 20, 2024 It is with profound sadness that we announce the passing of our dear colleague, Dr. Lawreen Connors, on October 20, 2024. Lawreen was a cornerstone of the Amyloidosis Center for many years, renowned not only for her groundbreaking research but also for her generosity, mentorship, and collaborative spirit. More
New study underway in Boston for people with advanced stage of AL amyloidosis
Few treatment options exist for patients with this life-threatening rare disease. New research is trying to change that.
Vutrisiran in Patients with Transthyretin Amyloidosis with Cardiomyopathy
The HELIOS B trial, recently published in NEJM, has unveiled promising results for patients with ATTR amyloidosis with cardiomyopathy (ATTR-CM). Vutrisiran, a cutting-edge siRNA therapy, significantly reduced the risk of death and cardiac events compared to placebo. Over 36 months, Vutrisiran also showed improvements in walking distance and quality of... More
ISA 2024 Report
Click here to view a synopsis of the BU Amyloidosis Center's attendance at the International Symposium on Amyloidosis at the Mayo Clinic May 26-30, 2024.
Statement on Amyloidosis by Ann Peel for the U.S. Senate
Click here to see full statement.
How Well Are You Managing Transthyretin Amyloidosis (ATTR)?
https://url.us.m.mimecastprotect.com/s/CIYtCzp59jCkoYkKh4FCbx?domain=everydayhealth.com/ An article for Everyday Health about managing transthyretin amyloidosis, lifestyle habits, treatment, medication, and complications with our very own Lisa Mendelson, NP.
2024 Webinar: ATTR Cardiac Amyloidosis
What's new and exciting in ATTR cardiac amyloidosis in 2024 Dr. Fredrick Ruberg and Dr. Omar Siddiqi discuss the general overview of ATTR treatment with new developments over the past year (APOLLO-B, ATTRibute-CM), currently enrolled trials (HELIOS-B, CARDIOTTRansform), and future trials (DepleTTR-CM, MAGNITUDE). They will also cover current heart failure therapy... More
Amyloidosis Language Included in the Fiscal Year 2024 Senate Bill and Report
2024 Omnibus Amyloidosis Report Language
17th Annual Bill’s Race to Beat Amyloid at Cannon
Our anonymous matching grant donor has raised the challenge to $7500 for 2024! Race & Silent Auction - Saturday, March 9th at 11 a.m. 17th Annual Bill’s Race to Beat Amyloid at Cannon March 1, 2023 - March 31, 2023 Register to race & be eligible to buy an all-mountain ticket for $55 Complete... More
Amyloidosis Center Newsletter Winter 2024
Click here for the Amyloidosis Center Newsletter Winter 2024