2020 Amyloidosis House LHHS Report
There was a recent large increase of funding for NIH, The House Appropriations Committee has also reported on a bill that contains very positive language on Amyloidosis. 2020 Amyloidosis House LHHS Report Language HOUSE APPROPRIATIONS COMMITTEE FISCAL YEAR 2020 LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION H.R. 2740, H Report 116-62 May 15, 2019 REPORT […]
FDA Approves New Treatments
https://www.fda.gov/news-events/press-announcements/fda-approves-new-treatments-heart-disease-caused-serious-rare-disease-transthyretin-mediated “This is an epic moment for the treatment of ATTR amyloidosis. We are very excited and hopeful for the expanding landscape of ATTR amyloidosis by the approval of tafamidis, the first drug approved for ATTR cardiomyopathy. Tafamidis will have a tremendous impact on patients with both hereditary and wildtype ATTR amyloidosis. Given the complexities […]
Amyloidosis Center Research
Amyloidosis research
#GivingTuesday – 11/27/2018
Working Together to Cure Amyloidosis! Considering donating to support The Amyloidosis Center on #GivingTuesday, November 26, 2018. #AmyloidResearchFund Your contribution matters no matter how small or big! #InItToWinIt
2019 House and Senate language on Amyloidosis
August 24, 2018 Last night the Senate passed the fiscal year 2019 Labor HHS bill. This is the first time the bill has passed the Senate floor in a decade. This gives more emphasis to language included in the Senate and House reports on Amyloidosis and the hope for completing a House Senate conference and […]
FDA COULD MAKE A HISTORIC DECISION FOR AMYLOIDOSIS PATIENTS
Patients Have “Fingers Crossed” As Alnylam Awaits Historic FDA Decision
Repurposing a cardiac test to help diagnose cardiac transthyretin amyloidosis
Featuring Dr. Frederick L. Ruberg, our senior cardiologist | Read more below https://www.cardiovascularbusiness.com/topics/imaging/resurrecting-tc-99m-pyp-cardiac-amyloidosis-therapies-emerge-old-test-gains-new
Bedford, NH Student Honors Her Late Father with Senior Project
Bedford student honors late father with senior project http://www.wmur.com/health/bedford-student-honors-late-father-with-senior-project/38711062?src=app
Fit To Be Tied: Race for Amyloidosis Awareness
Bob was a psychologist for over 30 years, wearing crazy ties to work every day. So we thought it was only fitting to call his race: “Fit To Be Tied” Come out and run in memory of Bob Palmer and in support of Amyloidosis research and awareness on May 22nd in Onondaga Lake Park in […]
Calli and Saige Beatman’s Mini Golf Charity “Fun” Raiser
Calli and Saige Beatman Fundraiser in memory of “grandma”. Calli and Saige lost their grandmother to amyloidosis in 2014. Saige, a 6th grader at McGee Middle School in Berlin, CT won an essay contest advocating for charity. She chose the Amyloidosis Center and is working with her older sister Calli, who is doing the fundraiser. […]